# Tuesday, September 05, 2006

One more update about my Dad and then some catching up from the old "stuff to blog" file. My Dad has an inoperable lump. Visually the surgeon says it is cancer, but two biopsies have been negative. This lump was blocking bile ducts, blocking the bowel, and doing various things that cause terrible pain and can kill you within days. His late August surgery moved things out of the way of the lump, leaving him to recover from the surgery (and subsequent abscess) and the weight loss and muscle loss that comes from going over 6 weeks without really eating. He has done an amazing job of that, returning within days to regular bike riding, sailing the 26 foot wooden boat he took around the world, and putting weight back on. He is also figuring out how to balance his pain meds so that he can stay as active as he wants to be.

How long does he have? We don't know. He could have died back in August in that dingy hospital room, wearing just that stupid backless gown and with no comforts of home. Now he is home, with ocean views from every room, his own clothes, his own shower, his bike, his boat, music, his laptop, and family. I hope he has another year or more... but we are all prepared for less. And we are all living as though he has more, much more.



Tuesday, September 05, 2006 11:48:30 AM (Eastern Daylight Time, UTC-04:00)  #    Comments [1]
Tuesday, September 19, 2006 4:43:00 PM (Eastern Daylight Time, UTC-04:00)
My regards to you and your family.

Last year my youngest was born with a genetic disease (ultra long total colonic hirschsprung's disease -- or TCHD) which left 2/3rd of her bowel useless. After numerous surgeries and lots of hospital stays, the surgical team (and we) have found a routine for Fin that keeps her stable and happy.

I can only imagine the emotional roller coaster that you and your family are experiencing, but from a family member of a loved one with bowel disease, I wish extend my well wishes to you during this time.

On a side note: Hope to see you on (Trent) campus some time in the future! :)
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